Debra Lee Scott: Unveiling A Legacy Of [Positive Impact] – You Won'T Want To Miss This

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Click on the flag to view the website, social media page, or email address of your national debra or eb patient support group. The registry will allow eb healthcare professionals to capture the demographics of eb, identify patients for clinical trials, and provide evidence for advocacy among others. This will be delivered by eb clinical nurse specialists and leading consultant physicians and surgeons from guy’s and st thomas’ nhs foundation trust and great ormond street hospital. For the first time, the event comes to south america, bringing together experts, researchers, and the global eb community to shape the future. Learn more about the vision, mission, and goals of the organisation. Debra groups are collaborating to develop and maintain an international eb patient registry. Debra south africa started in 2020 after around 30 years of informal patient support. The eb clinical teams from both centres work collaboratively to deliver a comprehensive … The information and recommendations in our eb patient guides and infographics come from clinical practice guidelines (cpgs). On this page, you can find a list of all countries where a debra, or other eb patient support, group exists. On this page, you can find information on upcoming debra and eb-related events including conferences, professional training courses, educational webinars, and awareness raising opportunities. Debra international is the central body for a worldwide network of nearly 50 national debra and eb support groups working on behalf of those affected by the genetic skin blistering condition epidermolysis bullosa (eb) Debra international is delighted to welcome debra south africa as one of its newest member groups. The international eb congress 2026 brasil is the leading global event dedicated to advancing eb care, fostering collaboration, and driving innovation. You can share the cpgs with your healthcare professionals to guide them in your treatment and care. More information coming soon. Find out about the history of debra and how it has developed globally, and about the creation of debra international. A unique two-day study programme about the rare inherited condition epidermolysis bullosa (eb). Why create debra international?